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Education

Introductory image: People listening to a conference presentation

Conferences

AAMDSIF holds two types of educational conferences - those devoted to the needs of patients and families and those tailored for health professionals. Both long-term survivors and the newly diagnosed come to patient conferences for updates from leading experts, to learn new skills and to connect with each other. Our professional events include regional conferences, as well as top-tier global scientific meetings. 

Podcast

Our patients, families, and caregivers have been asking us for more ways to learn about rare blood cancers and bone marrow failure diseases. So, we're coming to you today, thanks to generous support from individual donors and our corporate partners, including Celgene.

Take Control of Your Care

Taking control of your care means being a proactive patient and standing up for yourself in the health care decision-making process. We teach patients and families proven strategies for becoming strong advocates, which is the best way to ensure that you're receiving the care and treatment you need.

Recent Research

Compiled for your convenience are the latest articles on bone marrow failure research and treatment from the world’s major journals on hematology / oncology. Articles are obtained from the National Library of Medicine’s MEDLINE database and date back to 2010.

FAQs

This section provides easy-to-understand answers to the questions we hear most often from patients and families. Just click on the question to view the answer.

Patient Guides and Fact Sheets

AAMDSIF patient guides are complete resources, written and reviewed by recognized medical professionals who are experts in bone marrow failure disease.

Guidance for Bone Marrow Failure Patients to Protect Against Coronavirus (COVID-19)

This content has been prepared in consultation with AAMDSIF Medical Advisory Board Chair Mikkael Sekeres MD, MS of Sylvester Comprehensive Cancer Center, University of Miami and Co-Chair Olatoyosi Odenike MD of the University of Chicago with additional review by Amy DeZern, MD, Johns Hopkins and Carlos De Castro, MD, Duke. (August 2021)

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