AAMDSIF Staff | Aplastic Anemia & MDS International Foundation

AAMDSIF Staff

Chief Executive Officer

Janice Frey-Angel, CEO and Executive Director

Janice Frey-Angel, CEO & Executive Director.  Janice Frey-Angel has worked for over 25 years in the nonprofit sector.  With her master’s degree in social work, she began her career as a therapist for individuals, families, couples, and children, focusing on domestic violence. In her leadership positions, she has developed coalitions within organizations and with like-minded organizations as well as with groups who had never worked together before to make a greater impact in their communities.  She has been the leader of multiple nonprofit organizations with missions such as promoting stronger families and protecting mental health, rehabilitation, disabilities, and workforce development.  She has served as the Interim President and CEO of the National Human Services Assembly; Everybody Wins DC; The Bazelon Center for Mental Health Law; Thompson-Markward Hall; The National Healthy Mothers, Healthy Babies Coalition; and has run 3 non-profit organizations, including Melwood where she led over 1,600 employees at over 70 sites and managed an $86 million budget.

A nationally-recognized expert on nonprofit management and boards, Ms. Frey- Angel’s volunteer work has been focused on strengthening the nonprofit sector; she has served as a board member of United Way of Central Maryland and as the board chair of Maryland Association of Nonprofits and Maryland Works. In addition, in recognition of her success in turning around the nonprofits she has led, she has been named in The Daily Record’s Maryland’s Top 100 Women, The Gazette’s 25 CEOs You Need to Know, The Washington Business Journal’s 25 Women Who Mean Business, and has received Rotary’s Paul Harris Award for Service.  Connect

Elise Harper

Elise Harper, Administrative Services Manager. Elise joined the Foundation in 2010 and serves in a variety of functions. She provides admin support for the CEO, manages our database of patients and health care professionals and handles financial processes. With extensive experience in customer service, she also is our donors’ first point of contact, insuring that receipts for contributions and information requests are handled in a timely manner. What’s more, Elise keeps track of our event and education materials inventory and is in charge of shipping. Connect

Patient Advocacy, Education & Communications

Julie Powers

Julie Powers, Senior Director of Patient Advocacy. Julie joined AAMDSIF in August 2018 and oversees all of the Foundation’s patient advocacy work, education programs and communications. Prior to joining the Foundation, she spent more than two decades in senior nonprofit leadership roles with Michigan Community Action, the National Foundation for Credit Counseling, Michigan Equality, Mid-Michigan Environmental Action Council and the Greater Lansing Housing Coalition. Most recently, she headed up a development consulting firm serving nonprofit clients across the country. An active community volunteer, Julie is a founding board member for Voices for Health Care, serves as a Patient-Centered Outcomes Research Institute (PCORI) Ambassador and is a Commissioner for the Montgomery County Council on Landlord and Tenant Affairs. She holds a B.A. in Business Administration from Alma College (Michigan). She and her rescue dog, Maggie, live in Silver Spring, Maryland.  Connect

Leigh Clark

Leigh Clark, Patient Educator. Leigh has dedicated more than a decade to serving patients, families, and loved ones in the rare bone marrow failure disease sector for AAMDSIF.  In this role, her reach spreads across the nation to points across the globe. Leigh helps coordinate all of the AAMDSIF Patient & Family Conferences, webinars and support groups as well as providing direct assistance via the Helpline and Chat. Her previous experience includes working as a patient advocate for individuals with developmental disabilities. She currently holds an Associate of Arts in Psychology and is currently working on a Bachelor of Science in Psychology from University of Maryland Global Campus. As a a cancer survivor, Leigh understands the life changing phase of diagnosis, the life threatening phase of treatment and the life long phase of living with cancer. Connect

Tricia Maddrey Baker

Tricia Maddrey Baker, Communications Manager. Tricia is responsible for expanding the Foundation’s online connection between our patient and health professional communities and the education, support and research programs that we offer. Her diverse background ranges from small nonprofits and associations to corporate philanthropy. She’s also achieved excellent results in stakeholder engagement and credits her parents with her passion for service, as well as her artistic vision. Connect

Health Professional Programs

Alice Houk

Alice Houk, Senior Director of Health Professional Programs. Alice manages the research grant program, monitors newly published research and drug company announcements, coordinates the Scientific Symposium, serves as liaison to the Medical Advisory Board, and is the primary contact with other professional and patient organizations. She also leads efforts in educating health professionals about bone marrow failure diseases.  Her nonprofit experience includes having served as a national organizer for the SAFE KIDS campaign and as a regional program coordinator for the March of Dimes. In addition, Alice has extensive experience working with volunteers in educational, fundraising, and program areas. She holds a Master's degree in Health Policy from the University of Maryland. Connect

Matt Lesser

Matt Lesser, Manager, Health Professional Programs and Research Grants. Matthew assists in the management of patient focused research projects, inclusive of patient recruitment and communication, as well as the management of accredited and non-accredited programs for Health Care Professionals. He also manages the annual grant application process including filing, reporting, record maintenance and follow-up, financial payment administration, and grant cycle closeout. Matthew assists our Development team in securing grant funding for AAMDSIF's continuing medical education and patient-focused educational programs and meetings. He began his work in the nonprofit sector while obtaining his bachelor’s degree from DeSales University, where he worked for the Moravian Historical Society in Nazareth, PA. He continued his nonprofit work at New Kensington Community Development Corporation in northeast Philadelphia in the spring and summer of 2015. Matthew also holds a Master’s Degree in Science, Technology, and Society from Drexel University. Outside of work, Matthew enjoys physical fitness training, reading and taking in the history of Washington, D.C.  Connect

Development

Desiree Ruiters

Desiree Ruiters, Industry and Corporate Relations Officer. Desiree is responsible for corporate development and grants management. Establishing and maintaining relationships with the Foundation’s partners in the pharmaceutical and health care services area is a key aspect of her work. She studied at the University of Capetown, South Africa, and her previous experience includes accounting and asset management at Mobil Oil in South Africa before moving to the Washington, DC area.  Connect

Julie Lowe

Julie Lowe, Director, Strategic Relations.  Julie works with champions and volunteers to build lasting relationships and secure individual support through a variety of giving programs including grassroots fundraising, direct mail, social media, events and workplace giving. A dedicated development and marketing professional, Julie has over 15 years of progressive experience in working with various impactful organizations in the non-profit world, working with Ronald McDonald House Charities of Greater Washington, DC, American Chemical Society, and American Association for Marriage and Family Therapy. Julie holds a B.S. in Marketing from Virginia Tech. She spends her days with her two growing girls and her husband finding new adventures and exploring the DC area.. Connect